The Hidden Potential of Autistic Kids
WHAT INTELLIGENCE tests might be overlooking when it comes to autism is a common question often overlooked by many of those involved in autism research.
When I was in fifth grade, my brother Alex started correcting my homework. This would not have been weird, except that he was in kindergarten—and autistic.
His disorder, characterized by repetitive behaviors and difficulty with social interactions and communication, made it hard for him to listen to his teachers.
He was often kicked out of class for not being able to sit for more than a few seconds at a time. Even now, almost 15 years later, he can still barely scratch out his name. But he could look at my page of neatly written words or math problems and pick out which ones were wrong.
Many researchers are starting to rethink how much we really know about autistic people and their abilities. These researchers are coming to the conclusion that we might be underestimating what they are capable of contributing to society. Autism is a spectrum disease with two very different ends. At one extreme are “high functioning” people who often hold jobs and keep friends and can get along well in the world.
At the other, “low functioning” side are people who cannot operate on their own. Many of them are diagnosed with mental retardation and have to be kept under constant care. But these diagnoses focus on what autistic people cannot do. Now a growing number of scientists are turning that around to look at what autistic people are good at.
Researchers have long considered the majority of those affected by autism to be mentally retarded. Although the numbers cited vary, they generally fall between 70 to 80 percent of the affected population.
But when Meredyth Edelson, a researcher at Willamette University, went looking for the source of those statistics, she was surprised that she could not find anything conclusive. Many of the conclusions were based on intelligence tests that tend to overestimate disability in autistic people. “Our knowledge is based on pretty bad data,” she says.
This hidden potential was recently acknowledged by Laurent Mottron, a psychiatrist at the University of Montreal. In an article in the November 3 issue of Nature, he recounts his own experience working with high-functioning autistic people in his lab, which showed him the power of the autistic brain rather than its limitations.
Mottron concludes that perhaps autism is not really a disease at all—that it is perhaps just a different way of looking at the world that should be celebrated rather than viewed as pathology.
Having grown up with two autistic brothers—Alex, four years younger than I, and Decker, who is eight years younger—Mottron’s conclusion rings true. As I watched them move through the public schools, it became very clear that there was a big difference between what teachers expected of them and what they could do.
Of course, their autism hindered them in some ways—which often made school difficult— yet it also seemed to give them fresh and useful ways of seeing the world—which often don’t show up in the standard intelligence tests.
That is because testing for intelligence in autistic people is hard. The average person can sit down and take a verbally administered, timed test without too many problems. But for an autistic person with limited language capability, who might be easily distracted by sensory information, this task is very hard.
The most commonly administered intelligence test, the Wechsler Intelligence Scale for Children (WISC) almost seems designed to flunk an autistic person: it is a completely verbal, timed test that relies heavily on cultural and social knowledge.
It asks questions like “What is the thing to do if you find an envelope in the street that is sealed, addressed and has a new stamp on it?” and “What is the thing to do when you cut your finger?”